Communications about the compensation scheme
More community members have recently seen, heard or read information about IBCA, compared to the last survey.
| December 2025 | August 2026 | |
| Yes | 77% | 85% |
| No | 20% | 14% |
| Prefer not to say | 3% | 2% |
Email remains the most common source of information followed by social media
Emails are the most common source of information mentioned by the community, with four in five (81%) recalling seeing, hearing or reading information about IBCA.
Nearly one in ten (9%) attended a drop-in IBCA event.
There were no significant differences compared to the previous survey.
Have you seen, heard or read any information about the Infected Blood Compensation Scheme in any of these places recently?
| Any information | 94% |
| Via email (e.g. from the Infected Blood Compensation Authority) | 81% |
| Social media (for example, Facebook, Twitter/X, Instagram, TikTok) | 25% |
| Online forums or communities | 19% |
Base: All IBCA database respondents (504) *94% are those who have seen any information from the prompted list. Compared to 85% who said they had seen something unprompted.
Those who recall seeing information about the compensation scheme described the timing of compensation and progress
| Timing of compensation | 48% |
| Statistics (number of claims processed / amount paid) | 38% |
| Claim process | 15% |
| Delays | 10% |
| Prioritisation | 8% |
| Eligibility | 2% |
| Staff | 2% |
| Injustice | 1% |
| % Net: Compensation Scheme | 1% |
Comments from respondents included:
- “Very good and understandable updates on YouTube. Able to watch the Board meetings, with some face seen at the events. That does come across as IBCA wanting to be transparent.”
- “Vague, newsletters need to break down the compensation categories so that we can read the information that is relevant to our claim, e.g. HIV, hep B, hep C”
- “It is a long email and sometimes I don’t bother to read it all. I am not interested in attending an event.”
- “I get regular emails from the IBCA which are very informative and gives me the feeling that I have not been forgotten.”
Registering intention to claim, visiting IBCA’s website and discussing with family and friends are the top actions after exposure to IBCA information
| Action taken | Intended action | |
| Sign(ed) up for updates from IBCA | 40% | 14% |
| Visit(ed) the IBCA website | 38% | 23% |
| Discuss(ed) the scheme with family or friends | 38% | 23% |
| Look(ed) up more information about the scheme | 36% | 13% |
| Visited gov.uk | 30% | 15% |
| Share(d) information about the scheme with family or friends | 26% | 17% |
| Search(ed) on the internet for more information about the scheme | 25% | - |
| Emailed IBCA | 25% | - |
| Call(ed) IBCA by telephone | 22% | 12% |
| Contact(ed) a support organisation | 20% | 11% |
| Seek(sought) legal advice | 11% | 12% |
| None of these | 10% | 5% |
| Register my intent to claim with IBCA | 9% | 6% |
| Donate(d) to a charity / support organisation | 4% | 1% |
IBCA’s website and the community newsletters are the most common sources for updates or information about the scheme
Both are trusted sources for accurate information and updates on the compensation scheme.
| Infected Blood Compensation Authority website | 62% |
| The IBCA community update newsletter | 62% |
| Social media (for example Facebook, Twitter/X, Instagram, TikTok) | 15% |
| Family or friends | 10% |
| Another government website | 7% |
| NHS websites | 4% |
| Newspaper, magazines (including websites) | 4% |
| Emails / updates (from IBCA) | 2% |
| My GP or another healthcare professional | 2% |
| None of the above | 4% |
Community members consider IBCA’s website to be the most trusted source for accurate information on the Scheme, closely followed by the newsletter
Nearly six in ten trust the IBCA website for accurate information, and a similar proportion trust the community newsletter.
This is important for two reasons. First, it means community members are seeking information direct from IBCA rather than relying on other third-party sources (e.g., social media, news websites, etc). Second, it suggests IBCA is managing to communicate sometimes challenging messages well.
| December 2025 | August 2026 | |
| Infected Blood Compensation Authority website | 72% | 59% |
| The IBCA Community Update newsletter | - | 55% |
| IBCA organised events (such as drop-in events) | - | 12% |
| Online forums or communities | 9% | 12% |
| Another government website such as gov.uk | 12% | 8% |
| Social media | 5% | 7% |
| NHS websites | 7% | 4% |
| News websites | 2% | 3% |
| My GP | 1% | 2% |
| Newspapers, magazines | 3% | 1% |
| Charities | 2% | 1% |
| None of the above | 8% | 7% |
| Don't know/Prefer not to say | 4% | 5% |
The information the community wants to receive from IBCA hasn’t changed, they would like information on the expected compensation timelines and details about how quickly claims will be processed
Most of the community would like to receive more information about when different groups will be eligible for compensation (71%).
Those who are affected are more likely to want to receive more information about when different groups will be eligible for compensation (78%).
| Expected timeframes of when different groups will be eligible for payment | 71% |
| Details on how quickly claims will be processed and anticipated wait times | 71% |
| Updates on the status of claims | 63% |
| Information about the process of selecting different groups for payment | 51% |
| Clarity on how compensation is calculated | 50% |
| Contact information and support for queries related to the compensation scheme | 38% |
| Access to a compensation calculator to estimate expected amounts | 34% |
| Don't know / Prefer not to say | 5% |
| Other | 4% |
| December 25 | August 26 | |
| Less than a month ago | 5% | 1% |
| More than a month ago but within the last 3 months | 3% | 5% |
| More than 3 months ago but within the last 6 months | 4% | 7% |
| More than 6 months ago but with the last year | 5% | 2% |
| More than a year ago | 12% | 3% |
| I’ve never attended an event or meeting hosted by IBCA | - | 80% |
| Don’t know | 45% | 1% |
| Yes - I’ve definitely heard of them | 81% |
| Yes - I think I’ve heard of them | 10% |
| No - I haven't heard of them | 8% |
| Don’t know | 1% |
| Poor location / too far / no drop-ins local area | 41% |
| Health condition / mobility issues / a disability | 11% |
| Timings / inconvenient schedule | 9% |
| Work commitments | 6% |