Overview
We ran a survey with people who have registered for our newsletter and expressed interest in helping to shape our service. We're publishing the results to be open about what we heard.
A further survey with the same questions was also undertaken with members of the public.
The survey of those registered with us aimed to gather views on how IBCA is perceived within the infected blood community, including trust in us to fulfil our role. The surveys were conducted between July and August 2026. This is the third survey we have carried out. The results of our previous survey are available to read here.
This feedback helps us to understand how the community feels, and shapes how we prioritise our communications to address the needs of the community. Thank you to those who took the time to share their experiences with us.
All information in this report was provided to IBCA by an independent research agency. We are sharing the findings of this survey as was presented to us by the agency, and have not altered those findings in any way.
What we did
An online survey was emailed to those who:
- signed up via our community update, and
- agreed to provide input into the design of IBCA
- agreed to be contacted by IBCA
- provided an email address.
504 people took part in the survey between 20 July and 16 August 2026.
The topics covered were:
- awareness of IBCA and understanding of its role
- trust in IBCA
- knowledge and trust of the Infected Blood Compensation Scheme
- communications about the compensation scheme
- awareness and perceptions of the registration service
- awareness and perceptions of the compensation calculator