Communications about the compensation scheme
Compared to the previous survey, fewer members of the community have recently seen, heard or read information about the Infected Blood Compensation Scheme. This may relate to changes in the profile of those responding to the survey over time.
Over three quarters (77%) of community members have recently seen, heard or read information about the Infected Blood Compensation Scheme.
However, awareness of information about the compensation scheme has dropped among infected and affected groups.
| June 2025 | December 2025 | |
|---|---|---|
| Yes | 89% | 77% |
| No | 10% | 20% |
| Prefer not to say | 2% | 3% |
Email remains the most common source of information followed by social media.
Emails are the most common source of information mentioned by the community, with three quarters (74%) recalling seeing, hearing or reading information about the Infected Blood Compensation scheme.
Social media is the second most common source of information, particularly among 35-54 (33%).
The least common sources of information included IBCA's website (less than 1%), ads on TV or YouTube (less than 1%) or communications from The Infected Blood Inquiry (less than 1%).
Have you seen, heard or read any information about the Infected Blood Compensation Scheme in any of these places recently?
The information in the table is limited to the four top sources of information only.
| Any information | 91% |
| Via email (e.g. from the Infected Blood Compensation Authority) | 74% |
| Social media (for example, Facebook, Twitter/X, Instagram, TikTok) | 22% |
| Online forums or communities | 19% |
Those who recall seeing information about the compensation scheme described the timing of compensation and progress.
| Timing of compensation | 43% |
| Statistics (number of claims processed / amount paid) | 9% |
| Claim process | 6% |
| Delays | 6% |
| Prioritisation | 2% |
| Eligibility | 1% |
| Staff | 1% |
| Injustice | 1% |
| % Net: Compensation Scheme | 51% |
Comments from respondents included:
- "I am in a group with weekly meetings. Our manager is in close touch with IBCA and the government. He keeps us abreast with what is happening."
- "The regular updates are particularly helpful. Friends and family often update each other. There have been sporadic news items in the general media."
- "The Infected Blood Compensation Authority provides Community Updates via email giving very informative information regarding claims, compensation figures, policy updates, registration for those who intend to claim."
- "Mostly updates about the compensation process, the latest amendments to documents and then discussions in the Facebook group I'm in."
- "It was via the emails being sent out. Some of them have a lot of information and I don't really have time to study it. I try and scan through to see if I can pick up the gist of things".
Visiting IBCA's website and signing up for updates are the top actions taken after seeing Infected Blood Compensation Scheme information.
| Action taken | Intended action | |
|---|---|---|
| Sign(ed) up for updates from IBCA | 47% | 21% |
| Visit(ed) the IBCA website | 48% | 29% |
| Discuss(ed) the scheme with family or friends | 38% | 25% |
| Look(ed) up more information about the scheme | 31% | 18% |
| Visited gov.uk | 31% | Not asked |
| Share(d) information about the scheme with family or friends | 24% | 20% |
| Search(ed) on the internet for more information about the scheme | 24% | 14% |
| Emailed IBCA | 24% | Not asked |
| Call(ed) IBCA by telephone | 24% | 16% |
| Contact(ed) a support organisation | 11% | 8% |
| Seek(sought) legal advice | 12% | 12% |
| None of these | 8% | 14% |
| Register my intent to claim with IBCA | Not asked | 27% |
| Donate(d) to a charity / support organisation | 3% | 1% |
IBCA's website continues to be the most common source for updates or information about the Scheme.
For updates or information about the Infected Blood Compensation Scheme, most (80%) community members say they use IBCA's website.
The website is also the most trusted source for accurate information and updates on the compensation scheme.
| Infected Blood Compensation Authority website | 80% |
|---|---|
| Social media (for example Facebook, Twitter/X, Instagram, TikTok) | 18% |
| Online forums or communities, including charity websites | 14% |
| Family or friends | 12% |
| Another government website | 8% |
| NHS websites | 7% |
| Newspapers and magazines (including websites) | 6% |
| Emails / updates (from IBCA) | 4% |
| Charities (for example Haemophilia Society / Haemophilia Wales / Hep C Trust) | 1% |
| My GP or another healthcare professional | 1% |
| None of the above | 4% |
Community members consider IBCA's website to be the most trusted source for accurate information on the Scheme.
When seeking accurate information on the compensation scheme, nearly three quarters (72%) said IBCA's website is the most trusted source of information.
| June 2025 | December 2025 | |
|---|---|---|
| Infected Blood Compensation Authority website | 59% | 72% |
| Online forums or communities | 19% | 9% |
| Another government website, such as gov.uk | 25% | 9% |
| Social media | 14% | 5% |
| NHS websites | 7% | 7% |
| News websites | 6% | 2% |
| Newspapers and magazines | 4% | 3% |
| Legal representatives / solicitors | 1% | 12% |
| Charities | 2% | 2% |
| My GP / Haematology Consultant | 1% | 1% |
| None of the above | 10% | 8% |
| Don't know / Prefer not to say | 2% | 6% |
The community wants IBCA to provide information on the expected compensation timelines and details about how quickly claims will be processed, along with overall transparency and clarity on the actions IBCA is taking.
Most of the community would like to receive more information about when different groups will be eligible for compensation (72%).
Those who are affected are more likely to want to receive more information about when different groups will be eligible for compensation (85% compared to 72%).
| Expected timeframes of when different groups will be eligible for payment | 72% |
| Details on how quickly claims will be processed and anticipated wait times | 69% |
| Updates on the status of claims | 59% |
| Information about the process of selecting different groups for payment | 55% |
| Clarity on how compensation is calculated | 48% |
| Contact information and support for queries related to the compensation scheme | 42% |
| Access to a compensation calculator to estimate expected amounts | 29% |
| Other | 4% |
| Don't know / Prefer not to say | 4% |