If your needs or losses are greater than the set amounts
You may be able to claim extra compensation via the "supplementary route". This is for exceptional cases and the vast majority of people will only need to use the core route.
This could apply to you if the usual care and financial loss compensation amounts are not enough to cover the money you've lost due to your infection, or due to a rare severe health condition you have developed as a result of your infection.
You'll also be able to claim for extra compensation in the autonomy award category if you were the victim of unethical research.
If you choose to apply through the supplementary route, your core route payment will remain unaffected. You will need to provide extra information about your individual situation which could result in a longer assessment process.
Autonomy award for unethical research
This award is available to compensate victims who were subjected to unethical research practices.
You may be eligible to receive either £10,000 (if you were treated at an eligible centre or part of an eligible study during a specified date range), or £15,000 if you attended Lord Mayor Treloar College during a specified date range.
If you are eligible for both awards, you will receive the higher amount, but not both.
Meet one of the criteria below | During the following date range |
---|---|
Participant in one of Dr Craske’s studies | 1974 - 1984 |
Treatment at Oxford Haemophilia Centre | 1974 - 1984 |
Treatment at Edinburgh Haemophilia Centre | 1974 - 1984 |
Treatment at Newcastle Haemophilia Centre | 1974 - 1984 |
Treatment at Royal Free Haemophilia Centre | 1974 - 1984 |
Treatment at Glasgow Haemophilia Centre | 1974 - 1984 |
Treatment at St Thomas’ Haemophilia Centre | 1974 - 1984 |
Treatment at Cardiff Haemophilia Centre | 1974 - 1984 |
Treatment at Manchester Haemophilia Centre | 1974 - 1984 |
Treatment at Sheffield Haemophilia Centre | 1974 - 1984 |
Attended Lord Mayor Treloar College | 1970 - 1983 |
You will need to provide evidence to show that you are eligible for this award.
Severe Health Condition award
You may be able to get extra support if you have a severe health condition that is not covered by the core route. This could include a financial loss award or a care award.
You may qualify if you have a condition in one of these groups:
Group one - severe visual impairment
Group Two - Neurological disorders resulting in long-term severe physical or mobility disability
Group Three - Neurological disorders resulting in long-term severe neurocognitive impairment
Group Four - Severe psychiatric disorders potentially resulting in inpatient psychiatric care
Group Five - End-stage kidney disease requiring renal replacement therapy
Group Six - Other hepatic disorders caused by Hepatitis B or Hepatitis C resulting in long-term severe disability
Severe Health Condition – Financial Loss award
If you have a qualifying severe health condition, you may be eligible for a higher rate of financial loss. This is because your condition is likely to have caused greater financial impact than the standard rate under the core route.
You must provide medical evidence to show you have a qualifying condition
If you are in Group 2, 3 or 4, you must also show evidence that you were unable to work for all or part of the year.
You cannot apply for this award if:
- you have HIV – the rate you receive is already the maximum
- you developed your condition after reaching retirement age – it would not have affected your ability to earn
Severe Health Condition – Care award
If you have a severe health condition the core route may not provide you with the amount of care you will require for your whole lifetime.
In this case, the supplementary route may give you an additional care award.
You may be eligible if:
- The number of years between your diagnosis and your healthy life expectancy is greater than the number of care years assumed under the core route
Severe health conditions | Condition | Financial Loss award | Care award modification* |
---|---|---|---|
Group 1 Severe visual impairment | HIV | No additional award. | Domestic support and ad hoc care Equates to 6 hours per week: Support with heavier domestic tasks, attendance of medical appointments and household maintenance. |
Group 2 Neurological disorders resulting in long-term severe physical or mobility disability Evidence of inability to return to work required. | HIV | No additional award. | Low care Low care band equates to 16.5 hours per week consisting of 6 hours per week domestic support and 1.5 hours per day personal care. |
Group 2 Neurological disorders resulting in long-term severe physical or mobility disability Evidence of inability to return to work required. | Hepatitis | Financial loss for years following diagnosis is adjusted to 100% financial loss. This equates to £29,657 per annum from year of severe health condition diagnosis until age of 66 (retirement age) then the corresponding pension rate. | Low care Low care band equates to 16.5 hours per week consisting of 6 hours per week domestic support and 1.5 hours per day personal care. |
Group 3 Neurological disorders resulting in long-term severe neurocognitive impairment Evidence of inability to return to work required. | HIV | No additional award. | Low care Low care band equates to 16.5 hours per week consisting of 6 hours per week domestic support and 1.5 hours per day personal care. |
Group 3 Neurological disorders resulting in long-term severe neurocognitive impairment Evidence of inability to return to work required. | Hepatitis Decompensated cirrhosis | Financial loss for years following diagnosis adjusted to 100% financial loss for years of severe health condition diagnosis beyond 4 years. This equates to £29,657 per annum from year of severe health condition diagnosis until age of 66 (retirement age) then the corresponding pension rate. | Low care Low care band equates to 16.5 hours per week consisting of 6 hours per week domestic support and 1.5 hours per day personal care. |
Group 4 Severe psychiatric disorder Evidence of inability to return to work required. | HIV | No additional award. | Domestic support and ad hoc care Equates to 6 hours per week: Support with heavier domestic tasks, attendance of medical appointments and household maintenance. Adjustment to low care upon provision of social services needs assessment confirming requirement for long term personal and domestic care as defined by scheme in the ‘low care’ band. Low care band equates to 16.5 hours per week consisting of 6 hours per week domestic support and 1.5 hours per day personal care. |
Group 4 Severe psychiatric disorder Evidence of inability to return to work required. | Hepatits | Financial loss for years following diagnosis adjusted to 100% financial loss. This equates to £29,657 per annum from year of severe health condition diagnosis until age of 66 (retirement age) then the corresponding pension rate. | Domestic support and ad hoc care Equates to 6 hours per week: Support with heavier domestic tasks, attendance of medical appointments and household maintenance. Adjustment to low care upon provision of social services needs assessment confirming requirement for long term personal and domestic care as defined by scheme in the ‘low care’ band. Low care band equates to 16.5 hours per week consisting of 6 hours per week domestic support and 1.5 hours per day personal care. |
Group 5 End-stage kidney disease requiring renal replacement therapy (RRT) | HIV | No additional award. | Domestic support and ad hoc care from diagnosis of condition. |
Group 5 End-stage kidney disease requiring renal replacement therapy (RRT) | Hepatitis | Financial loss for years on dialysis adjusted to 100% financial loss. This equates to £29,657 per annum from year of severe health condition diagnosis to the age of 66 (retirement age) then the corresponding pension rate. | Domestic support and ad hoc care from diagnosis of condition. |
Group 6 Other Hepatic disorders resulting in long-term severe disability | Hepatitis | Living person with a Hepatitis B infection For those born after 1953: Pre effective treatment (2008 and earlier): 70% financial loss, £20,760 per annum For those born after 1953: Effective management from 2009: 60% financial loss, £17,794 per annum For those born in or before 1953: 70% financial loss, £20,760 per annum Living person with a Hepatitis C infection For those born in or before 1961: 70% financial loss (£20,760 per annum) For those born after 1961: from diagnosis until 2017: 70% financial loss (£20,760 per annum) For those born after 1961: 2017 onwards: 60% financial loss (£17,794 per annum) | Living person with an infection Domestic support and ad hoc care Equates to 6 hours per week: Support with heavier domestic tasks, attendance of medical appointments and household maintenance |
*An applicant’s Severe Health Condition Care award will be dependent on the applicant’s Infection Severity Band and the number of years and type of care already included in the core Care award
Exceptional Loss awards
You may be eligible for an additional award if your financial loss or care costs are higher than those assumed under the core route.
This may apply if:
- you were a very high earner before becoming infected
- you had higher-than-expected care costs or paid for care before 31 March 2025
There are 4 types of exceptional loss award:
- financial loss (PAYE earnings)
- financial loss (self-employment earnings)
- care award for excess deemed costs
- care award for excess actual costs
Exceptional Loss awards - Financial Loss
You may be able to get this award if you were a high earner and had to reduce your working hours or stop working because of your infection.
You must provide clear evidence of your income before and after your earnings were affected.
You are unlikely to be eligible for an additional award if you were able to keep working normally for a number of years after you were infected. This is due to the assumptions already made under the core route.
What you can apply for
You can apply for one of the following:
- High earner: PAYE earnings award (for employed people)
- High earner: Self-employment earnings award (for self-employed people)
You cannot apply for both.
Earnings thresholds
To qualify, your annual earnings must have been:
- 60th percentile if you have Hepatitis B or C
- 75th percentile if you have HIV
If your exceptional loss award is lower than the Severe Health Condition- Financial loss award, you will receive the Exceptional Loss – Financial loss award amount. You will never receive less than the amount offered through the core route.
You should think carefully about your circumstances and seek advice before applying.
High earners: Employment Income (PAYE earnings)
This is for people who were employed through Pay As You Earn (PAYE). The award considers:
- basic salary
- overtime pay
- incentive pay
You will need to provide:
- proof of income from when your earnings fell due to infection until you turn 66
- evidence of your annual salary before your earnings reduced due to the infection
High earners: Employment Income (self-employed)
This is for people who are, or were, self-employed. The award considers:
- basic salary
- overtime pay
- incentive pay
It does not include income from:
- dividends
- investments
- capital gains
- savings
- shares or trusts
You will need to provide:
- proof of income from when your earnings fell due to infection until you turn 66
- income records for the 5 years before your earnings were affected — this will be averaged to calculate your award
Exceptional Loss awards – Paid for Care Costs
You may be able to apply for this award if you paid for care in the past, on or before 31 March 2025.
This is because the core route assumes that care was provided informally and for free by friends or family.
You may be eligible for one of the following care awards:
Care (excess deemed costs) award
This award removes the 25% deduction (‘gratuitous care’) applied to past care costs under the core route.
You may qualify if:
- you received paid care for at least 6 months
- your evidence includes details of the type of care provided
Care (excess actual costs) award
For care costs higher than 2024 commercial rates
This award allows you to submit full evidence of the care costs you paid before 31 March 2025.
You may qualify if:
- your past care costs are higher than the total amount provided through the core route and the Severe Health Condition award (if applicable)
This award is capped at an additional 25% above the total you would have received under both the core route and Severe Health Condition award.