Skip to main content

This is a new website. Help us improve it and give your feedback.

Who answered the survey

  • 57% female
  • 71% aged 55+
  • 94% white British (higher than the Great Britain average)
  • 6% Black, Asian and Minority Ethnic which are a low diversity group

Also, people living in:

  • Scotland, South East and South West were represented at a higher proportion in the sample than they exist in the general population of Great Britain
  • Greater London, West Midlands and East of England were represented at a lower proportion in the sample than they exist in the general population of Great Britain

To note: this is the demographic breakdown of the survey respondents and not necessarily representative of what the infected and affected blood community looks like.

Percentage of male and female respondents
Gender Percentage
Female 57%
Male 43%
Percentage of age groups of respondents
Age group Percentage
16 - 24 0%
25 - 34 2%
35 - 44 10%
45 - 54 18%
55 - 64 37%
65 - 74 26%
75+ 8%
Personal infected blood status
Status Percentage
I am directly infected 48%
I am indirectly infected 4%
I am affected as a family member or caregiver 41%
I represent the estate of someone infected or affected 27%
I represent a charity or community group for those infected or affected 1%
I am an interested third party e.g. journalist, solicitor 0%
I have received support payments from an Infected Blood Support Scheme (IBSS) 51%
I have started the process of applying for support payments from an IBSS 14%
I have chosen not to apply for support payments from IBSS 0%
I am not eligible to apply for support payments from IBSS 18%
I prefer not to say 4%
Not applicable 14%
Personal infected blood status by age
Status Under 55 55 or older
I am directly infected 24% 76%
I am affected as a family member or caregiver 38% 62%
I represent the estate of someone infected or affected 31% 69%
Chart showing personal infected blood status by age group
Personal infected blood status by gender
Status Female Male
I am directly infected 44% 56%
I am affected as a family member or caregiver 70% 30%
I represent the estate of someone infected or affected 65% 35%

Help us improve the IBCA website

Tell us how we can improve this page.