Trust in IBCA
Trustworthiness
Community members are divided on how trustworthy they feel IBCA is. Whilst just over a third (34%) feel it is trustworthy, a similar proportion (31%) think it is untrustworthy.
Levels of trust in IBCA are similar to levels of trust in the NHS.
Ability to fulfil its aims
Around a third (37%) think IBCA will fulfil its aim to deliver compensation to each and every one entitled to it, without exception. However a similar proportion disagree (35%).
Confidence in IBCA's ability to meet its aim seems to mirror trust in IBCA; those who view IBCA as trustworthy are significantly more likely to agree that it will bring compensation to each and every one who is entitled to it (63%). Similarly, those who do not trust IBCA are significantly more likely to disagree with the statement (62%).
| Very trustworthy | 12% |
| Fairly trustworthy | 22% |
| Neither | 25% |
| Fairly untrustworthy | 17% |
| Very untrustworthy | 14% |
| Don't know | 10% |
Community members aged 75 or older are more likely to view IBCA as trustworthy – with almost half (46%) of this age group perceiving it as trustworthy. In contrast, those aged between 35 and 54 are more likely to distrust IBCA (41% compared to 31% overall).
| IBCA | The National Health Service (NHS) | The Department of Health and Social Care | The UK Government | |
|---|---|---|---|---|
| Very trustworthy | 12% | 7% | 4% | 2% |
| Fairly trustworthy | 22% | 30% | 17% | 10% |
| Neither | 25% | 23% | 26% | 17% |
| Fairly untrustworthy | 17% | 19% | 18% | 22% |
| Very untrustworthy | 14% | 17% | 25% | 45% |
| Don't know | 10% | 3% | 9% | 3% |
Respondents told us that the levels of trust in IBCA are broadly similar, albeit it slightly lower, to levels of trust in the NHS (34% trustworthiness in IBCA compared to 37% trustworthiness in the NHS).
| All respondents | Respondents who view IBCA as trustworthy | Respondents who view IBCA as untrustworthy | |
|---|---|---|---|
| Strongly agree | 12% | 24% | 4% |
| Tend to agree | 25% | 36% | 13% |
| Neither | 19% | 14% | 15% |
| Tend to disagree | 20% | 12% | 28% |
| Strongly disagree | 16% | 3% | 34% |
| Don't know / Prefer not to say | 10% | 9% | 6% |
The replies we received told us that older people from the community are more likely to think IBCA will fulfil its aims - almost half of those aged between 65 and 74 (44%) and 75+ (46%).
Understanding why
Respondents were offered the opportunity to provide more detailed feedback about the level of trust they felt in IBCA to bring compensation to each and every one who is entitled to it, without exception.
| Process | 32% |
| Justice for those impacted | 27% |
| Perceptions of IBCA | 18% |
| Communication | 3% |
Comments from respondents included:
- IBCA are working very hard to achieve this, it will take time for it to be done, I accept that I will be last to be compensated. Still believe that I will be, at years of age, I hope that I won't have to wait too long. I trust that IBCA has my best interests at heart.
- I believe Sir Brian Langstaff won't give up on the people that have suffered from this terrible cover up. He will make sure that we will all get what we deserve.
- Because it is separate from the Government who have allowed this scandal to go on far too long.
- They seem to want to compensate all those who have suffered as victims of the Infected Blood Scandal, along with their families, carers who have watched their suffering.
- I believe this system to be fairer on everybody applying for compensation.
- The scheme seems to be running well atm. I keep an eye out for email updates. I am waiting to be able to put a claim in myself.
- The information that is found on the website lists who are entitled and with the latest infographics, it makes it much easier to understand.
However, of those who agree IBCA will fulfil its aims, 50% of them shared negative mentions of IBCA in their feedback. These comments included:
- There remain those infected who didn't realise for some time, they need justice and compensation too.
- We have to trust the Authority to deliver the scheme as otherwise we will not be correctly compensated. Our issue is with the delays and constant fobbing off and inefficiency in delivery.
| Delayed process | 49% |
| Flawed process | 41% |
| Evading responsibility | 38% |
| Complicated process | 28% |
| Lack of trust | 17% |
Comments from respondents included:
- Because whenever you call up and ask to register in it, they tell you that the lines are not open yet. It is rolling out far too slow and has started to roadblock itself and stop making payments.
- Because our community have been let down over and over again and they keep moving the finishing line. They are waiting for us to die to save money.
- Because my parent died as an affected person after the announcement of their entitlement. They will not be able to pass that money onto my children, so you will not be paying compensation to everyone who was eligible.
- Because of the delay in people getting the compensation too many will die before they receive any form of justice. I strongly believe that justice delayed is justice denied.
- They are doing it as slowly as possible to avoid paying out.
- Nothing I have seen to date suggests that the victims are at the heart of IBCA or the Cabinet Office. The goal posts have been moved on a few occasions clearly for money saving reasons causing more unnecessary suffering to victims.
- There are too many barriers for infected people that have not been able to register on one of the 4 nationwide schemes. Everyone that is infected should have been allowed to register and then the ones that cannot provide evidence should be weeded out.
- The paperwork is too complicated when surely if it's on a death certificate it should be accepted. I am angry at how long this is taking and have very little faith that people will receive compensation before dying.
| Delayed process | 46% |
| Flawed process | 31% |
| Evading responsibility | 24% |
| Complicated process | 19% |
| Lack of trust | 11% |
Comments from respondents included:
- I fear that the continual delays to compensation roll out will result in it not reaching people who are entitled to it in time. In the case of affected individuals, it was stated in a previous report that if they pass away before compensation is received that the compensation dies with them. This is unacceptable. People have waited decades for their loss to be recognised and compensated.
- It's been over a year since the inquiry finished and compensation was agreed to be paid but we've still not been given dates as to when payments will be made only updates that tell us nothing useful.
- There are already inequalities within the scheme, which will be swept under the carpet.
- I do no envy your agents at all, and I believe complex family structures will mean people deeply affected by this will not be recognised. A line needs to be drawn somewhere, and structure needs to be put in place, but we are dealing with emotional issues, which quite often are unquantifiable. I believe that people will fall through the cracks, and as such won't get compensation that they deserve.
- Although they have been respectful and courteous in their correspondence, this evasiveness has troubled me.
- At this stage I have no information to make this judgement, the system as I perceive it is slow and complicated, leaving me doubting the delivery aspects for everyone.
- I don't have any faith in the entire compensation framework.
| Do not trust at all (1) | Distrust (2-3) | Trust (8-9) | Completely trust (10) | Average score | |
| In a way that is free from stigma | 11% | 9% | 17% | 12% | 5.8 |
| Respectfully | 13% | 13% | 17% | 11% | 5.5 |
| Safely | 12% | 10% | 15% | 9% | 5.5 |
| Compassionately | 17% | 14% | 14% | 9% | 5.1 |
| Fairly | 25% | 17% | 12% | 5% | 4.3 |
| Transparently | 26% | 17% | 11% | 6% | 4.3 |
| Accessibly | 17% | 17% | 10% | 6% | 4.7 |
| Effectively | 26% | 22% | 8% | 5% | 3.9 |
| Independent of the government | 36% | 17% | 7% | 4% | 3.5 |
| Efficiently | 32% | 24% | 7% | 4% | 3.5 |
| Quickly | 49% | 22% | 3% | 3% | 2.6 |
| Distrust (1-3) | Trust (8-10) | ||
|---|---|---|---|
| Quickly | All respondents | 9% | 17% |
| Directly or indirectly effected | 13% | 17% | |
| Affected | 10% | 15% | |
| Efficiently | All respondents | 14% | 14% |
| Directly or indirectly effected | 17% | 12% | |
| Affected | 17% | 11% | |
| Independent of the government | All respondents | 17% | 10% |
| Directly or indirectly effected | 22% | 8% | |
| Affected | 17% | 7% |