Thank you for your email received on the 14 May 2026, in which you made a request for access to certain information which may be held by the Infected Blood Compensation Authority.
As you may be aware, the purpose of the Act is to allow a general right of access to information held at the time of a request, by a Public Authority (including the Infected Blood Compensation Authority), subject to certain limitations and exemptions.
We have now had the opportunity to fully consider your request and we provide a response for your attention.
Following receipt of your request, searches were conducted with the Data Directorate of the Infected Blood Compensation Authority. We can confirm that the information you have requested is held by the Infected Blood Compensation Authority.
You asked the following
I am writing to request the data you hold in relation to the number of people acting on behalf of a deceased infected person’s registered estate where the representative is nearing end of life.
I would also like to request the data you hold in relation to the number of people acting on behalf of a deceased infected person’s registered estate who are over the age of 75.
Our response
We have now had the opportunity to fully consider your request under the Freedom of Information Act 2000 (FOIA) and have provided a response for your attention below.
Request 1: The number of people acting on behalf of a deceased infected person’s registered estate where the representative is nearing end of life.
The following caveats apply: The numbers represent unique registrations and not unique people, and the data is accurate as of the time registrations were submitted.
| End of life | Registrations count |
|---|---|
| Yes | 107 |
| Not sure | 339 |
| No | 2239 |
| Null | 1 |
Request 2: The number of people acting on behalf of a deceased infected person’s registered estate who are over the age of 75.
For this request, we have used the beneficiary's date of birth to determine age groups. Please note that on the registration form, this field is optional and can be skipped so we do not have information for all deceased infected registrations (represented as "null" in the table below).
The following caveats apply: The numbers represent unique registrations and not unique people, and the data is accurate as of the time registrations were submitted.
| Age group | Registration count |
|---|---|
| 75 and over | 714 |
| Under 75 | 1819 |
| Null | 153 |
Please note that for both of the above, we have included every deceased infected registration known to IBCA. We have not made a distinction between individuals representing a deceased infected person and other claims submitted by legal representatives. These figures also do not include change of circumstances (people who have passed or become end of life since registering) and the numbers may also include duplicate registrations.