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Hearing community views is essential to our work in delivering the Infected Blood Compensation Scheme. We have a range of ways in which we work with individuals, representative groups and charities, including:

  • joining sessions and events across the UK that are run by community groups and charities
  • running our own community sessions that are open to everyone
  • regular meetings with charities and groups, online and in person
  • visits to our office in Newcastle to see our work firsthand
  • hearing views from our Communications Advisory Panel
  • recruiting in autumn 2025 for a community panel to advise our Board

We have listed the community groups and charities that we engage with regularly for your information. We also engage with a range of independent campaigners.

If you think other groups should be added to our list, please let us know by emailing ibca.engagement@ibca.org.uk.

Organisations and campaigners

Blood Friends (formerly North West England Support Group)
Contaminated Blood Women
Former Treloar’s School Pupils
Haemophilia Action UK
Individual campaigner for estates, women and carers
Manor House Group
Mono-HCV Infected Haemophiliacs
Positive Women
Misdiagnosed Victims

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