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Who answered the survey

  • 57% female
  • 71% aged 55+
  • 94% white British (higher than the Great Britain average)
  • 6% Black, Asian and Minority Ethnic which are a low diversity group

Also, people living in:

  • Scotland, South East and South West were represented at a higher proportion in the sample than they exist in the general population of Great Britain
  • Greater London, West Midlands and East of England were represented at a lower proportion in the sample than they exist in the general population of Great Britain

To note: this is the demographic breakdown of the survey respondents and not necessarily representative of what the infected and affected blood community looks like.

Percentage of male and female respondents
GenderPercentage
Female57%
Male43%

This table shows the percentage of female respondents (57%) was higher than male respondents (43%).

Percentage of age groups of respondents
Age groupPercentage
16 - 240%
25 - 342%
35 - 4410%
45 - 5418%
55 - 6437%
65 - 7426%
75+8%

This table shows the highest percentage of respondents were from the 55-64 years age group (37%) followed by 65-74 years (26%), 45-54 years (18%), 35-44 years (10%), 25-34 years (2%) and 16-24 years (0%).

Personal infected blood status
StatusPercentage
I am directly infected48%
I am indirectly infected4%
I am affected as a family member or caregiver41%
I represent the estate of someone infected or affected27%
I represent a charity or community group for those infected or affected1%
I am an interested third party e.g. journalist, solicitor0%
I have received support payments from an Infected Blood Support Scheme (IBSS)51%
I have started the process of applying for support payments from an IBSS14%
I have chosen not to apply for support payments from IBSS0%
I am not eligible to apply for support payments from IBSS18%
I prefer not to say4%
Not applicable14%

This table shows that 48% of respondents were directly infected, 4% were indirectly infected, 41% were affected as a family member or caregiver, 27% represent the estate of someone infected or affected, 0% were an interested third party, for example, a journalist or solicitor, 51% have received support payments from an Infected Blood Support Scheme, 14% have started the process of applying for support payments from an Infected Blood Support Scheme, 0% have chosen not to apply for support payments from an Infected Blood Support Scheme, 18% are not eligible to apply for support from an infected Blood Support Scheme, 4% prefer not to say and for 14% it was not applicable.

Personal infected blood status by age
KeyStatusUnder 5555 or older
I am directly infected24%76%
I am affected as a family member or caregiver38%62%
I represent the estate of someone infected or affected31%69%

Of those respondents that were under 55 years of age, 24% were directly infected, 38% were affected as a family member or caregiver and 31% represented the estate of someone infected or affected. Of those who responded to the survey that were 55 years of age or older, 76% were directly infected, 62% were affected as a family member or caregiver and 69% represented the estate of someone infected or affected.

Chart showing personal infected blood status by age group
Personal infected blood status by gender
StatusFemaleMale
I am directly infected44%56%
I am affected as a family member or caregiver70%30%
I represent the estate of someone infected or affected65%35%

Of those respondents who were female, 44% were directly infected, 70% were affected as a family member or caregiver and 65% represented the estate of someone infected or affected. Of those respondents who were male, 56% were directly infected, 30% were affected as a family member or caregiver and 35% represented the estate of someone infected or affected.